Sunday, February 8, 2015

coop catch-up

Oh my poor neglected little blog. So many memories I'm forgetting by not writing them down!  Although, some things are best forgotten.  Like the past 2 months or so... 

We are back at the hospital with Coop. Crohns problems rear their ugly head once again.  His dilation from 3 weeks ago has already closed down again.  And after a rushed ER visit yesterday when he started throwing up and scared the heck out of us, a CT scan he rocked without sedation, and various doctors and nurses poking and prodding him... They decided he was safe enough to wait until Monday for another dilation surgery (they determined it was not a complete blockage) but not safe enough to return home. 


It blows my mind that 10 small centimeters of Crohns infected colon can do so much damage. 

Coop is being tough. Dave and I are being tough. Grace and Liam are being tough. But I so wish none of us had to. I wish we could all be heading for a day at the zoo, or running weekend errands, or just lounging around the house with the most concerning thing on our minds being what to make for dinner.  To tell the truth, the happy Instagram pics and Facebook statuses kinda break my heart sometimes.  I long for normal, boring days at home with all my kids happy and healthy. 

Instead we are arranging childcare and puppy care and trying to make the best most informed decisions we can for Coop. We are trying to keep him happy and us calm and wracking our brains for how to do each and every procedure and doctor/nurse interaction with the least amount of stress to his already stressed little mind and body. Not to mention worrying about our 2 kiddos at home who are worried and homesick for the 3 of us.  


Sorry. This is not a happy post. Or even a post with any pretty pictures. But sometimes it just feels better to write it all down, you know?  Even if it's raw and ugly, poorly written, and badly photographed. ;)  Plus it is the best way to reach all you Cooper-lovers with an update. Sorry we can't text or call each and every one of you. Coop is demanding every second of our time, so this is the best we can do for now. 

Say some prayers for Coopie when you have a spare minute over the next few days. And for his surgeons and doctors. And for Dave and I to find the best possible course for relief for him and feel confident in our decisions. 

Xoxo -Angel

Wednesday, October 15, 2014

yo gabba gabba

Last night we took the boys to their first concert. 

I made the mistake of telling them about it when we purchased the tickets. A month ago. And Cooper has asked Every. Single. Morning. if it was the big day.  Needless to say, he was a bit excited. 

I told him we had to wait for the tickets to arrive in the mail before we could go. I actually had to just print out the Groupon, but he was satisfied with checking the mailbox everyday. :)

I used my awful art skills to draw up this:

and stuck it in our mailbox with the tickets inside on the big day. I recorded a super cute video of them finding it, but of course my phone crashed right at the end and lost it. :(  But trust me, the smiles and Coop's happy dance were priceless. The memory is at least etched on my Mama heart. :)

Coop asked about every 5 minutes on our way to the show if we were really finally going to "Gabba Gabba Live?!"  

And all the hype was worth it. 

The boys sang and danced and giggled. They clapped for their favorite characters (Muno!  DJ Lance!). And they both got their little faces up on the big screen:

It was amazing. Mostly because there isn't a whole lot that Coop gets to do that he really, truly gets excited about. He is sick so many days of his little life.  He misses birthday parties and school field trips. We cancel play dates and miss family get-togethers.  He gets overwhelmed with crowds and noise and usually just ends up asking to go home. 

So, for last night to go off without a hitch, for Coop to LOVE it and ask on our way out for "Elmo live please?"  Well, Dave and I agreed it was money we would spend again and again and again. 

Thanks Yo Gabba for putting smiles on all our faces. Even Dave enjoyed shaking his booty when Biz Markie busted out his beat of the day and Dave's old jam, "Let Me Clear My Throat". ;) (and if you understand that sentence,you definitely have children. Ha!)

Tuesday, September 16, 2014

take me out to the ball game. or not.

Last night we went to our first baseball game as a family. It was the first time the boys had been, and only the second time for Grace. They were SO excited. 

Well, Liam and Grace were. Coop has had a few rough weeks with illness, so he was asking for 'home' and 'iPad' and 'no game please' the entire way there.  We knew it could end up being a huge flop, but since he wasn't horribly ill, and we had been generously given the tickets from Spare Key (an awesome organization who paid our mortgage for a month when Coop was inpatient with heart surgery) we really wanted to go make an appearance!  So we told Coop he had to take one for the team and went for it.  (And loaded him up on Tylenol and Ibuprofen to hedge our bets.)

Thankfully our friend offered their kid-sized noise canceling headphones (as well as all their Twins gear!) right as we were heading out of town. I don't think we would have lasted 2 minutes without them!  The loud noise and music before we even got inside the stadium was enough to put Coop on edge. The fireworks during the Star-Spangled Banner would have sent us home for sure if we hadn't had them on his ears. (We ordered two of our own pairs on the ride home.) 

It was a chilly night, so truthfully, once we got in our seats both boys were already asking to go home.  Not exactly the reaction we were looking for.  We tried to distract them with $60 worth of snacks and treats (holy cripes) but in the end we only lasted an hour. 

So it was kind of a bust. The pictures make it look a lot more fun than it actually was. Ha!  But there were moments of fun in the middle of mostly miserable. ;) Liam freaked (in a good way :)) the minute he saw the field. Coop got the pic above on the Jumbotron. And Grace devoured her favorite ball game treat, a gigantic hot dog.

And we chalked it up to a chilly night and the boys being a bit too young to 'get it'. We will try again next year!  #gotwins!

Sunday, September 7, 2014

liam lines #4

Liam: Mom, do you know where the bakery is?
Mom: No but Dad does.
Liam: Yep, my Dad knows. Cause he's a really excellent finder.

Do you smell that horrible sound?

After Coop finished his homework:
Liam: Wow!  You're cracking me up in my BRAIN!

I told Liam he could have chocolate milk before bed. Dave disagreed.
Dave: He shouldn't be having that before bed. It's all sugar.
Liam: (whispering giggle) Mom, but I like sugar.

Let's snuggle together. So we can have dreams in our hearts.

After Dave and I got back from vacation we were giving the kids a few souvenirs:
Dave: We were trying to pick a good shirt for you.
Liam: But you didn't?  So you just got me this one?

When I was 3 I never knew myself.

Dave: Cooper, you need to use your words.
Liam: It's ok buddy. You just need to work it out!

Liam from his bed:
Is someone eating CHIPS?!  I hear that munching.  If I come out there and see someone munching, you are going to sleep in my bed for the whole night. That's the deal.

Hey Mom, I'm going to put Cooper's doughnuts in my room for the night so they can be safe.

My butt smells like farts. Yours smells like flowers and princesses.

Dave: What time is it?
Liam: 36 I think. Or maybe it's 37.

While showing him houses we were looking at online:
Oh wow, look at that kitchen. It looks really appetizing.

Mom: Do you want some mango?
Liam: No, I don't like flamingo.

Dad. Do you know what water mixed with skittles taste like?  Skittles water. And it tastes really bad for my health.

When it's my cat's birthday, do I blow the candles out for him?

You know what I saw?  Lightning. So I ran into your room really fast, just like the gingerbread man.

Dad, you're getting really big and old. 

Mom, let me kiss you!  I promise I won't put my tongue in your mouth.

While at a friend's house: 
Liam: I'm going to poop, then you're going to wipe my butt.

Why do dogs have butt circles and people have butt cracks?

*Heard from the bathroom after he finished peeing*
Liam: Atta boy!

Friday, September 5, 2014


We may have lost our minds. In a fit of "we will promise you anything to get you to eat and drink and get out of this hospital" we told Coop we were getting a dog.  

We had been researching dogs and dreaming of getting one for quite a while. Well, I had been anyways. Dragging Dave grudgingly along with me. ;)

But after the unexpectedly long hospital stay for Coop (new pacemaker battery with an unplanned new lead change as well) we took the plunge when we saw this adorable little face online:

His first official mug shot. Isn't he cute?!  One meet-n-greet, a house visit, and he was ours. These rescue places aren't messing around!  They make sure their pups are going to good homes, and somehow we made the grade. ;)

The kids are loving him up and we are quickly remembering a puppy is no small job. Thank goodness for wood floors and baby gates and lots and lots of paper towels. 

Welcome to your new home little Olaf. We hope you like lots of noise, we promise to balance it out with lots of love. :)